ALS and coronavirus share quite a few similarities. Keeping a distance from others that might carry viruses, isolation and not knowing when it will end.
Living with ALS means living with the well-intentioned, callous remarks of others. While our bodies are failing, our ears still work. Think, then speak.
With ALS one of the things that you lose that removes you from life is your voice - the ability to communicate. A personal amplification - PAD device helps.
Living with Amyotrophic Lateral Sclerosis - ALS takes constant adjustment to keep living with a disease we cannot beat, but we can't let it beat us.
CHARLOTTE, NC: Woody Allen, the prolific screenwriter, movie director and comedian, once said that “Showing up is 80 percent of life.” For those of us with ALS, that percentage is probably higher. The more familiar name for ALS, at least in the United States, is Lou Gehrig’s disease. The man who was known as the ...
Living with ALS I think of Shaw’s play Back to Methuselah: “You see things; and you say, ‘Why?’ Me, I dream things that never were; saying ‘Why not?
One of the lessons of life, and baseball, we need to learn is that home is the ultimate goal. And home means responsibilities that don't change.
In my pre-Pinocchio days when I could walk and talk like a real boy, I visited the Christmas markets in Europe where Christmas is the way it should be.
With ALS, the more routine the better. By establishing a set beginning, middle and end for each daily activity, both sides know what to expect and when.
For travelers with ALS and other disabilities, Switzerland is at the top of the list for ease. The Swiss Travel System has made transportation an art form.
One of the few gifts of ALS, if you can call them gifts, is that the affliction slows the pace of living and allows time to focus and reflect upon the past.
An immediate cure might not exist, there should be some way to arrest the deterioration process of ALS. That would halt its progression. Hence the cynicism.
Alexa can turn on or off your light or play music. She is a source of up to the minute news and information. But she can't cure ALS
Sometimes even the best of ideas are not always practical. Now up to 3,724 on my new "sleep number" bed, I will persevere because ALS never sleeps.
Actually living with ALS, I remain uncertain if the compassion of others is directed toward me. Or if people become kinder toward any disabled individual.
Veteran medical patients whohave spent more than one night in a hospital have a view of life which I had never before experienced...until this week.
Diabolical ALS brings new daily challenges. However, the good times far outweigh the bad ones . Living with amyotrophic lateral sclerosis brings some fun.
Living with ALS means the road is shorter, and the bumps harder. But I can't change that. I can only change how well I take it.
Our first ALS story of the year ought to bring a little humor into our lives. ALS humor? They say that ALS is no laughing matter. But the truth is that laughter is often the best medicine.
CHARLOTTE, NC: From the moment we are born three things come naturally; breathing, sucking and swallowing. Swallowing is such a common thing that most people do it about 600 times a day and don’t even think about it. That is until that someone contracts Amyotrophic Lateral Sclerosis or ALS and dysphagia. Nearly 80 percent of ALS patients think ...