Living with Amyotrophic Lateral Sclerosis, writing 172 columns about the disease and my life with it, now I learn about the "heterogeneity of ALS."
With ALS one of the things that you lose that removes you from life is your voice - the ability to communicate. A personal amplification - PAD device helps.
Living with Amyotrophic Lateral Sclerosis - ALS takes constant adjustment to keep living with a disease we cannot beat, but we can't let it beat us.
CHARLOTTE, NC, October 6, 2019 – Sometimes I imagine myself in camouflage fatigues fighting an invisible creature called ALS. More commonly known as, Lou Gehrig’s Disease. The truth is, that although ALS is a daily struggle that resembles a war, that’s where the similarities stop, because, in the end, the affliction is going to win. ...
If nothing else, my journey with ALS has enriched my appreciation for the simple joys of life. Sweet, sweet contrasts.
When I say that ALS brings unwanted change, we tend to dwell on things we can no longer do anymore and put ourselves in the “ALS waiting room.”
ALS is a terrible disease. But it has its blessings. It robs us of our bodies, but we get to keep our minds, memories. Our brains make it liveable.
When winter transitions into spring, North Carolina weather is as different as night and day. Like ALS, you don't know what to expect, you just go along with it.
Diabolical ALS brings new daily challenges. However, the good times far outweigh the bad ones . Living with amyotrophic lateral sclerosis brings some fun.
CHARLOTTE, NC: Every day with Amyotrophic lateral sclerosis or ALS is an adventure. Most of the time it’s not pleasant, but there are exceptions now and then. Sometimes, there are actually benefits, though I can’t think any at the moment. As I have mentioned on several occasions, sleeping can be one of the most challenging ...
ALS, Amyotrophic lateral sclerosis, is a particularly difficult diesease as it causes the sufferer to reverse age, needing physical help as a child
CHARLOTTE, NC: One lesson ALS quickly teaches is that each day is a new experience. If “variety is the spice of life” then ALS has to rank among the “spiciest” diseases in existence. Comedian Redd Foxx would tell this one joke. Foxx would say his uncle had two regrets in his whole life. One that ...
CHARLOTTE, NC: Today is a milestone for me because it marks my 100th column about ALS since being diagnosed with the condition. Though ALS is not something anyone desires to deal with, like almost anything else, there are mixed blessings hidden within the daily rituals of overcoming the on-going adjustments the ailment presents. Most people ...
ALS patients are currently under-diagnosed and untreated. More research is necessary as EDS or excessive daytime sleepiness is a quality of life issue.
Having lived with ALS for little over a year, things have happened to me I cannot control. Does that make me a victim? It might, but I continue to live, travel, write and love. So while my body may be a victim of the disease, I am not letting it take any more of my life than it can.
From The Hope Gala to sandlot games, Chris Combs, former N.C. State Baseball Star, is working to not only raise funds, but raise funds to find an ALS cure.
My ALS has brought about a new form of anticipation. It has been a blessing to open my eyes each morning and greet a new day even though I am keenly aware of the looming struggles. John Lennon and his philosophy of life's beauty is one that I embrace.
Each person deals with ALS in their own way. One thing I have noticed is that despite the level of loss of dexterity, almost everyone I encounter has a positive attitude and seems to have adjusted to their plight in their own personal way.
Mecklenburg County, No. Carolina is making an all-out effort to be pro-active toward veterans. This Christmas, the spirit of Santa Claus is alive and well.
Each day with ALS is a transition. A new learning experience. Morphing from being able to do simple daily tasks into partial dependency is one of the hardest.