Living with Amyotrophic Lateral Sclerosis, writing 172 columns about the disease and my life with it, now I learn about the "heterogeneity of ALS."
Sparky Anderson would manicure the ball field. Extra water along the third-base line to slow the ball. A rounded baseline to keep the ball in the infield.
May 2, 1939, New York Yankees first baseman Lou Gehrig benched himself for the "good of the team." After 2,130 consecutive games, the streak was over.
John Lennon would be happy to know that despite ALS there's still plenty of life to live. As for Woody Allen, I fully intend to participate.
Before ALS, I had food likes and dislikes. Soon, I won't be able to enjoy eating as my food will come via a tube. But until then, I want full-bellied clams.
Living with ALS means living with the well-intentioned, callous remarks of others. While our bodies are failing, our ears still work. Think, then speak.
Being diagnosed with ALS one of the first things we learn is to be prepared. For anything. The CoronaVirus threat is just one more thing to be ready for.
With ALS one of the things that you lose that removes you from life is your voice - the ability to communicate. A personal amplification - PAD device helps.
Rare Disease Day, February 29, raises awareness of ALS - Amyotrophic lateral sclerosis - and the fight to find a cure for this, and other, rare diseases
Are you the owner of half-filled glasses, or do you see them as being empty? Either way can be a reason for optimism in your life.
Living with Amyotrophic Lateral Sclerosis - ALS takes constant adjustment to keep living with a disease we cannot beat, but we can't let it beat us.
Steve Gleason receives the Congressional Medal of Honor for his work to create awareness, life-altering devices and the defeat of ALS
CHARLOTTE, NC: Woody Allen, the prolific screenwriter, movie director and comedian, once said that “Showing up is 80 percent of life.” For those of us with ALS, that percentage is probably higher. The more familiar name for ALS, at least in the United States, is Lou Gehrig’s disease. The man who was known as the ...
Two days before Christmas, my four-year-old granddaughter said of Santa Claus, "I think he'll bring you a little wheelchair!"
With ALS, the more routine the better. By establishing a set beginning, middle and end for each daily activity, both sides know what to expect and when.
One of the few gifts of ALS, if you can call them gifts, is that the affliction slows the pace of living and allows time to focus and reflect upon the past.
CHARLOTTE, NC, October 6, 2019 – Sometimes I imagine myself in camouflage fatigues fighting an invisible creature called ALS. More commonly known as, Lou Gehrig’s Disease. The truth is, that although ALS is a daily struggle that resembles a war, that’s where the similarities stop, because, in the end, the affliction is going to win. ...
Alexa can turn on or off your light or play music. She is a source of up to the minute news and information. But she can't cure ALS
ALS victims know there is no single frame of reference for comparing notes. Particularly when you also discover you are aging.
Life is only temporary. All ALS provides a slightly more defined awareness of the inevitable. The Spontaneity, Serendipity, Synchronicity of it all