Our fellow residents must be delighted that we no longer represent the "Appalachia" contingent of the environment with our renovations. The car is off blocks in the front room, the washer and dryer are off the porch. But the renovations are not quite done and we are still waiting on the VA
The ALS Softball Challenge came to fruition in July of last year. Honoring the story of Lou Gehrig, the Hall of Fame New York Yankee first baseman who brought awareness of Amyotrophic Lateral Sclerosis to the limelight, the first game raising funds for ALS of $16,000.
Each morning when I quite literally "roll out of bed" I am greeted with the victorious sounds of George Friedrich Handel's "Hallelujah Chorus" ringing in my head. And I face another day of living with ALS and the gravity, darkness and various elevation of everyday
From The Hope Gala to sandlot games, Chris Combs, former N.C. State Baseball Star, is working to not only raise funds, but raise funds to find an ALS cure.
Even the name for the fear of falling has its own special irony for someone who played baseball for the first third of his life. Basophobia - the fear of meeting the ground face first. With ALS its a constant companion. Truth is pride goeth before the fall.
My ALS has brought about a new form of anticipation. It has been a blessing to open my eyes each morning and greet a new day even though I am keenly aware of the looming struggles. John Lennon and his philosophy of life's beauty is one that I embrace.
The world is a big place just waiting to be discovered. Even by disabled travelers. As one veteran travel writer once said, "I haven't been everywhere, but it's on my list." These websites can help
ALS is a matter of anticipation. The best thing to do is to attempt to stay ahead of your needs so that when the next phase occurs you are ready for it. Meaning its time for renovation.
Words are powerful things. They can be comforting to the bereaved, or they can, however unintentionally, hurt. Choose wisely and make them meaningful.
Grandchildren are wonderful blessings. They keep us young because they live in a young world and it is a joy to watch them grow and discover. There's a reason why your children's children are justifiably called "Grand."
Each person deals with ALS in their own way. One thing I have noticed is that despite the level of loss of dexterity, almost everyone I encounter has a positive attitude and seems to have adjusted to their plight in their own personal way.
In some ways, but to a far lesser degree, I have come to know that when my family shows up at the house in mid-afternoon on a weekday, that something is up. Something beyond the kindness of their time. This last Monday was a real surprise!
Anticipating the inevitable, Glen Campbell wrote a song in 2014 that was both mournfully poignant and bittersweet. It was for his wife, his caregiver. A last gift.
At the stroke of midnight each December 31st, we forget the fragility of life and celebrate its robustness. And then the phone rings.
Since being diagnosed with ALS, the writer remembers never forget that no matter what "life itself is a journey." He continues his goal to reach 100 countries “I haven’t been everywhere, but it’s on my list.” – Susan Sontag
Mecklenburg County, No. Carolina is making an all-out effort to be pro-active toward veterans. This Christmas, the spirit of Santa Claus is alive and well.
The Joe Martin ALS Foundation in Charlotte held a fundraising dinner with guest speaker John Grisham, author of "A Time to Kill", "The Firm", "The Pelican Brief". The gift to him creates a story, and link, between Grisham and my family.
Willfried Griebel loved NASCAR, playing cards and farming, and he didn't let his disease rob him of joy. His days were numbered, and he wasted none of them.
Sooner or later, my grandchildren will be taking care of me rather than the other way around. It never occurred to me that aging could be so definitive.
Suddenly, for no reason, I stopped. Then, within seconds, I found myself uncontrollably walking backward into the rain without being able to stop myself.