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Living with ALS by Bob Taylor

Bob Taylor documents his journey with Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease (MND) or Lou Gehrig’s disease

Renovating your life to live with ALS while endlessly waiting for the VA

Our fellow residents must be delighted that we no longer represent the "Appalachia" contingent of the environment with our renovations. The car is off blocks in the front room, the washer and dryer are off the porch. But the renovations are not quite done and we are still waiting on the VA

The Joe Martin Softball Challenge raising money to fight ALS

The ALS Softball Challenge came to fruition in July of last year. Honoring the story of Lou Gehrig, the Hall of Fame New York Yankee first baseman who brought awareness of Amyotrophic Lateral Sclerosis to the limelight, the first game raising funds for ALS of $16,000.

renovation

Living with ALS and a world of renovation

ALS is a matter of anticipation. The best thing to do is to attempt to stay ahead of your needs so that when the next phase occurs you are ready for it. Meaning its time for renovation.

With ALS

Living with ALS: The milkman cometh – again

Each person deals with ALS in their own way. One thing I have noticed is that despite the level of loss of dexterity, almost everyone I encounter has a positive attitude and seems to have adjusted to their plight in their own personal way.

Battling ALS with John Grisham and Southern cooking

The Joe Martin ALS Foundation in Charlotte held a fundraising dinner with guest speaker John Grisham, author of "A Time to Kill", "The Firm", "The Pelican Brief". The gift to him creates a story, and link, between Grisham and my family.