CHARLOTTE, NC, July 21, 2019 – In the twilight of his life, former New York Yankees catcher Yogi Berra was one of the best-loved characters in baseball. Amazing in that baseball is a game that is known for its off-the-wall, fun-loving personalities. Yogi’s particular quirk was his uncanny ability to say something that was completely ...
Dagmar Munn is a leading voice living with ALS. Her Lucky C.H.A.R.M. list, an acronym for protecting yourself in social situations, is valuable.
The number of gadgets and devices designed to keep ALS patients alive and mobile is amazing. This newest one turns us into human cargo.
The best advice upon being diagnosed with ALS is to anticipate the next thing. Next for me is learning a new innovation - Optical Writing, or a new eye-pad
Father's Day paraprosdokians are among those words of wisdom bestown upon us by dear ole' dad. Becauset the are quite simply, timeless
Sometimes even the best of ideas are not always practical. Now up to 3,724 on my new "sleep number" bed, I will persevere because ALS never sleeps.
What makes ALS Awareness more worthy of your fundraising contribution than say Cancer. Nothing. When it comes to supporting disease research, go with whom you know.
As the body stops doing what we want, ALS sufferers need to find workarounds, tricks, technology and a fancy new power wheelchair to find new normals
Your AHA moment may come with aceptance of the condition as much as it is knowing when you must yield and adapt to ALS. But that does not mean giving up.
Actually living with ALS, I remain uncertain if the compassion of others is directed toward me. Or if people become kinder toward any disabled individual.
ALS Awareness Month is not just for those who are healthy. Being aware of the disease, and how to continue living with a quality of life, is also important.
Generation to generation, Monarch butterflies pass on a genetic map allowing fragile butterflies to migrate back to an ancestral tree.
These poems are easy to understand. Iin their own unique way, capture the essence of Easte, spring and rebirth. And are worth keeping nearby.
When I say that ALS brings unwanted change, we tend to dwell on things we can no longer do anymore and put ourselves in the “ALS waiting room.”
Veteran medical patients whohave spent more than one night in a hospital have a view of life which I had never before experienced...until this week.
By now I have accepted my plight. The feeding tube is in. I am fully prepared to experience the tasteless delights of steak, cauliflower and okra smoothies.
ALS is a terrible disease. But it has its blessings. It robs us of our bodies, but we get to keep our minds, memories. Our brains make it liveable.
When winter transitions into spring, North Carolina weather is as different as night and day. Like ALS, you don't know what to expect, you just go along with it.
Diabolical ALS brings new daily challenges. However, the good times far outweigh the bad ones . Living with amyotrophic lateral sclerosis brings some fun.
Living with ALS means the road is shorter, and the bumps harder. But I can't change that. I can only change how well I take it.