Alzheimer’s strikes while family caregivers cope

Flickr/Tim & Selena Middleton

SAN DIEGO, August 5, 2014 — Learning that a loved one is stricken with Alzheimer’s can be tremendously shocking.

Though it’s possible that an explanation for unusual behaviors and personality changes provides some understanding and relief, when Alzheimer’s unexpectedly strikes a loved one, it is ultimately devastating.

Once a formal diagnosis is a certainty, there is no denying the truth.

Once the reality of Alzheimer’s presence has been accepted, it becomes difficult to watch a loved one in the throes of a horrible neurological disease which is progressive and incurable.

Resulting feelings of helplessness and hopelessness are perfectly understandable.

Alzheimer’s disease brings a most certain death sentence with an uncertain future and an impending unhappy ending.

In beginning, middle and end stages, Alzheimer’s coup de main is the complete physical and mental incapacitation and eventual death of a beloved family member or friend.

A major challenge for the caregiver is the ability to cope with the uncertainty of the exact stage of Alzheimer’s a loved one is in, and how long the progression of each stage will take.

A caregiver, therefore, is unexpectedly thrust into an emotional whirlwind filled with ever-changing, ever-evolving and unanticipated dynamics which significantly impact family life.

It is reasonable to expect grief as a result of acknowledging being involved in a process which leads to the eventuality of loss.

For most, the loss of a loved one is the most emotionally devastating grief experience.

As a caregiver shares the Alzheimer’s journey with a loved one, it can become a lengthy grieving process occurring over a period of many years, depending upon the individuated impact.

The lack of finality in a prognosis with no end in sight, the gravity of a caregiver’s responsibilities cannot be underestimated–it is likely an emotionally draining, physically exhaustive and all-encompassing journey.

Many practical concerns such as legal, financial, medical, transportation, home care, professional social support and more become necessary to address immediately.

The issues, needs and care for one with Alzheimer’s are ever-changing, and so must the care solutions also be.

Finding solutions to the ever-changing problems of a loved one suffering from Alzheimer’s, while simultaneously taking care of self, is likely a delicate and oftentimes daunting task.

As feelings of grief as part of the lengthy process of loss complicate the care giving process, so does any sense of guilt.

Feelings of guilt could be caused by a gnawing sense that there is never enough which can be done to care for a loved one, and not enough time or wherewithal in which to accomplish it.

It is imperative for a caregiver to give themselves permission and time for self care, in spite of the uncontrollable progression of Alzheimer’s disease.

Providing love, friendship, care and needed support for a loved one might sometimes require acknowledging the impossibility of being able to fulfill all caregiver responsibilities without help.

Photo courtesy of Eggybird/Wikimedia
Photo courtesy of Eggybird/Wikimedia

Accessing resources and assistance throughout the journey by contacting Care Giver Resource Centers, Alzheimer’s Associations, medical professionals, social service professionals, hospital-based organizations, family members, friends, volunteer organizations, home care services and the like will eventually be needed in varying degrees during various stages of the illness.

Ensuring maximum independence and quality of life for the loved one stricken with Alzheimer’s are critical goals.

Seeking balance while serving as a caregiver means knowing when it is time to reach-out for resources and assistance, ensuring personal well-being and an overall successful care giving experience.

It is entirely possible for a caregiver to eventually find solace in the knowledge that everything which could feasibly be done is being done.

As a caregiver extends unconditional love, care, and help on behalf of a loved one with Alzheimer’s, it might become apparent that any feelings of guilt are simply neither warranted nor deserved.

In the words of loving caregiver and daughter, Yvonne Roberts, published in The Observer, “I wonder if this will be the last Father’s Day Dad will remember. People say, ‘He’s 84, he’s not doing too badly,’ as if misfortune for the old is inevitable and rationed out.”

For loving family caregivers across America and around the world, please acknowledge and accept your hard-earn pair of invisible angel wings.


Until next time, enjoy the ride in good health!

Laurie Edwards-Tate, MS, is a health care provider of over 30 years. As a featured “Communities Digital News” columnist, LifeCycles with Laurie Edwards-Tate emphasizes healthy aging and maintaining independence, while delighting and informing its readers. Laurie is a recognized expert in home and community-based, long-term care services, and is also an educator.

In addition to writing for “Communities Digital News,” Laurie is the President and CEO of her firm, At Your Home Familycare, which serves persons of all ages who are disabled and infirm with a variety of non-medical, in-home care and concierge services.

Copyright © 2014 by At Your Home Familycare

Click here for reuse options!
Copyright 2014 Communities Digital News

• The views expressed in this article are those of the author and do not necessarily represent the views of the editors or management of Communities Digital News.

This article is the copyrighted property of the writer and Communities Digital News, LLC. Written permission must be obtained before reprint in online or print media. REPRINTING CONTENT WITHOUT PERMISSION AND/OR PAYMENT IS THEFT AND PUNISHABLE BY LAW.

Correspondingly, Communities Digital News, LLC uses its best efforts to operate in accordance with the Fair Use Doctrine under US Copyright Law and always tries to provide proper attribution. If you have reason to believe that any written material or image has been innocently infringed, please bring it to the immediate attention of CDN via the e-mail address or phone number listed on the Contact page so that it can be resolved expeditiously.

Previous articleObama’s new Cold War: U.S. aircraft flies into Swedish airspace to avoid Russian fighter jet
Next articleGannett to split in two. Stock pops but Wall Street set to open down
Laurie Edwards-Tate
Laurie Edwards-Tate, MS, President and Founder of At Your Home Familycare in San Diego, California, was among the first to recognize the growing need for services allowing individuals to remain independent created by the aging of America including the Baby Boomer generation, now being called the “Silver Tsunami.” It is the Baby Boomers who are rapidly redefining what aging and growing older means and looks like in America today. Now celebrating its 28th year in business, AYHF is among San Diego County’s Top Women-Owned Businesses and Fastest Growing Businesses, and enjoys a reputation for upholding the highest possible standards among its employees and its emphasis on customer service. Edwards-Tate is a valued contributor to the public dialogue on current issues and challenges in the home care industry, and serves in leadership roles on the Home Care Aide Association of America Advisory Board and Private Duty Home Care Association Advisory Board, as well as the Home Care Aide Steering Committee of the California Association for Health Services at Home. Edwards-Tate is frequently interviewed in the media on healthy aging, caregiving, and health care topics. Follow Laurie and AYHF at; on Facebook at, and Twitter at @AYHFamilycare
  • I have been reminded several times that the caregiver experiences the feeling of loss numerous times throughout the stages. So while we think of loss as a one-time event, for them it may occur dozens if not hundreds of times. Trying to help the caregiver get to a place of comfort knowing their loved one is receiving the best care is vital. I wish we could help everyone put a plan of care in place that would identify the needs and a person (other than the primary carer) responsible for each need. This would help lift the burden and get them to a point of enjoying being with their loved one more. Enriching for both.

    • Laurie Edwards-Tate

      You are so right, Mike. I believe many of us think of loss due to death as one final event–in this case, it occurs throughout the various stages of Alzheimer’s and a variety of other diseases. Thanks so much for your insights.

  • Pingback: Alzheimer’s strikes while family caregive...()