Living with ALS: This holiday, you don’t know what you’ve got ’till it’s gone
Christmas carol services take place later this week, and nothing will keep me away. You see, you don't know what you've got 'till it's gone.
Living with ALS by Bob Taylor
Living with ALS: Understanding the M&Ms of online ALS information
Living with ALS I think of Shaw’s play Back to Methuselah: “You see things; and you say, ‘Why?’ Me, I dream things that never were; saying ‘Why not?
Living with ALS: Coach John Scolinos and the lessons of life learned in baseball
One of the lessons of life, and baseball, we need to learn is that home is the ultimate goal. And home means responsibilities that don't change.
Living with ALS while embracing the love of the Christmas Holidays
In my pre-Pinocchio days when I could walk and talk like a real boy, I visited the Christmas markets in Europe where Christmas is the way it should be.
Living with ALS: Learning “Patient Patience” and dealing with “Ignorance”
With ALS, the more routine the better. By establishing a set beginning, middle and end for each daily activity, both sides know what to expect and when.
Living with ALS: Accepting life by learning how to “compartmentalize”
The key is to accept my new normal. Rather than fighting reality. If I am to live, I must find a way to exist amid the madness of ALS.
Living with ALS: Reminiscing about healthier days and new found tolerance
A handicap should most assuredly be acceptable for someone with a disability. Tolerance is a wonderful thing. The world could use more of it...in abundance.
Time for reflection and life at a slower pace: What living with ALS can offer
One of the few gifts of ALS, if you can call them gifts, is that the affliction slows the pace of living and allows time to focus and reflect upon the past.
Living with ALS: Dealing with the cynicism of having an incurable disease
An immediate cure might not exist, there should be some way to arrest the deterioration process of ALS. That would halt its progression. Hence the cynicism.
Living with ALS: Guidelines for moving forward efficiently
CHARLOTTE, NC, October 6, 2019 – Sometimes I imagine myself in camouflage fatigues fighting an invisible creature called ALS. More commonly known as, Lou Gehrig’s Disease. The truth is, that although ALS is a daily struggle that resembles a war, that’s where the similarities stop, because, in the end, the affliction is going to win. ...
Living with ALS and my new technology BFF – Alexa
Alexa can turn on or off your light or play music. She is a source of up to the minute news and information. But she can't cure ALS
Aging: Another big challenge for those living with J – ALS
ALS victims know there is no single frame of reference for comparing notes. Particularly when you also discover you are aging.
Living with ALS: The Three S’s of life Spontaneity, Serendipity and Synchronicity
Life is only temporary. All ALS provides a slightly more defined awareness of the inevitable. The Spontaneity, Serendipity, Synchronicity of it all
Living with ALS: Deciphering a new world of emojis and acronyms
Living with ALS means adapting to new ways to think, eat, move, live. Today's picto language of emojis and acronyms means adapting to how we use language
Living with ALS: Superheroes Gigi, William and Charlotte’s Firefighters
Gigi is a superhero, as is our grandson, William. They went out and found other superheros, the firefighters and first responders of Charlotte.
Living with ALS: Caregiver awareness and the importance of compromising
CHARLOTTE, NC: When you have ALS, there is a need for fore-thought. To think ahead of any potential situation. On both the part of the patient and the ALS caregiver. There’s a wonderful scene in the classic comedy spoof Airplane (1980) when a flight attendant borrows a guitar from a nun. With all good intentions, ...
Living with ALS through the eyes of Morrie Schwartz
Tuesdays with Morrie is the story of one man's journey wth ALS, Morrie Schwartz, toward the inevitable end. It made me recognize some important things.
Living with ALS: Purple Heart Homes for disabled veterans
A service for disabled veterans, Purple Heart Homes is a charity providing housing solutions for Service Connected Disabled Veterans and their families.
Living with ALS while adapting to 21st century social media
Social media is eating our minds. The human attention span has fallen to eight seconds since 2000, while the goldfish attention span is nine seconds.
Living with ALS: Appreciating the many contrasts of life
If nothing else, my journey with ALS has enriched my appreciation for the simple joys of life. Sweet, sweet contrasts.