Living with ALS and understanding “heterogeneity”
Living with Amyotrophic Lateral Sclerosis, writing 172 columns about the disease and my life with it, now I learn about the "heterogeneity of ALS."
Living with ALS by Bob Taylor
John Wooden on Sparky Anderson and finding your broom
Sparky Anderson would manicure the ball field. Extra water along the third-base line to slow the ball. A rounded baseline to keep the ball in the infield.
The day Lou Gehrig’s streak finally ended: Living with ALS
May 2, 1939, New York Yankees first baseman Lou Gehrig benched himself for the "good of the team." After 2,130 consecutive games, the streak was over.
Living with ALS: Life, living, according to John Lennon and Woody Allen
John Lennon would be happy to know that despite ALS there's still plenty of life to live. As for Woody Allen, I fully intend to participate.
Living with ALS: We only have “I’s” – irony, invention, ingenuity – for you
One of the silver linings of Pandemic 2020 has been how we have learned the new meaning of "I" - irony, invention, and ingenuity.
Living with ALS: Do they have full-bellied fried clams in heaven?
Before ALS, I had food likes and dislikes. Soon, I won't be able to enjoy eating as my food will come via a tube. But until then, I want full-bellied clams.
Living with ALS: The similarities between ALS and coronavirus
ALS and coronavirus share quite a few similarities. Keeping a distance from others that might carry viruses, isolation and not knowing when it will end.
Living with ALS: A lesson in what to say and when to say it
Living with ALS means living with the well-intentioned, callous remarks of others. While our bodies are failing, our ears still work. Think, then speak.
The blessings of living with ALS while avoiding the coronavirus threat
Being diagnosed with ALS one of the first things we learn is to be prepared. For anything. The CoronaVirus threat is just one more thing to be ready for.
Living with ALS: Dagmar Munn’s 4-Ms for travel under CoronaVirus threat
Really living with ALS means being able to adjust your life with your health. Toss the Coronavirus ontop of that, and it can mean a real challenge.
Living with ALS and learning to use a PAD (Personal Amplification Device)
With ALS one of the things that you lose that removes you from life is your voice - the ability to communicate. A personal amplification - PAD device helps.
Living with ALS and dealing with the unexpected
Having ALS creates a new level of unexpected surprises to deal with; only it does not stop the old ones from happening as well.
Living with ALS: Raising awareness on Rare Disease Day February 29, 2020
Rare Disease Day, February 29, raises awareness of ALS - Amyotrophic lateral sclerosis - and the fight to find a cure for this, and other, rare diseases
Living with ALS while learning about microphones and half-filled glasses
Are you the owner of half-filled glasses, or do you see them as being empty? Either way can be a reason for optimism in your life.
Constantly adjusting your world to living with Amyotrophic Lateral Sclerosis
Living with Amyotrophic Lateral Sclerosis - ALS takes constant adjustment to keep living with a disease we cannot beat, but we can't let it beat us.
Living with ALS: Congress honors Steve Gleason’s work to defeat ALS
Steve Gleason receives the Congressional Medal of Honor for his work to create awareness, life-altering devices and the defeat of ALS
Living with ALS and the art of comfortable disabled travel
Never yet have I been on a trip where there was nary a glitch. ALS just adds to the challenges. The objective is to expect the unexpected.
Living with ALS: Show up to life – the benefits of participation
CHARLOTTE, NC: Woody Allen, the prolific screenwriter, movie director and comedian, once said that “Showing up is 80 percent of life.” For those of us with ALS, that percentage is probably higher. The more familiar name for ALS, at least in the United States, is Lou Gehrig’s disease. The man who was known as the ...
Living with ALS: Reflections of 2019 as the New Year quickly approaches
Two days before Christmas, my four-year-old granddaughter said of Santa Claus, "I think he'll bring you a little wheelchair!"
Living with ALS and the joy of old fashioned Christmas Carolers visiting
At Christmas, the clear voice of a child in the night, brings meaning. I was overjoyed by our Christmas Carolers and the love they brought to my front door.